ALS Association– a leading association in the fight against Lou Gehrig’s
disease. Please go to “My Community” to find an affiliate closest to you. There
are bilingual services, and a large amount of up to date information of the
ALS-Mac Angels Supporting Families with ALS “MAC Angels is a non-profit
organization dedicated to supporting families living ALS. They provide services
and programs to enhance the quality of life for patients, family members and
caregivers who are impacted by ALS. MAC Angels supports families in a variety
of nonmedical ways. All of their assistance is free. Their goal is to compliment
the services and support offered by other organizations, not duplicate them.
They meet with your family and explore together, how they can help.
American Cancer Society-this national organization has local offices across the
country, as well as support services and counseling for every type of cancer. They
have a hotline, offer multilingual communication and have clinical trial referrals.
Please go to www.cancer.org and type in your zip code to find an affiliate near
Cancer Care– offers financial information, counseling, support groups, and more
to people with cancer and their families free of charge. 212-712-8400, 800-813-
4673 (toll free) www.cancercare.org
Cancer Support Team provides free nursing care, counseling and other
supportive services to individuals and families affected by cancer who live in
lower Westchester County. CST’s mission is to enhance the quality of life of
people at all stages of the disease. 914-777-2777.
Gilda’s Club free of charge and non–profit, Gilda’s Club Westchester
offers networking and support groups, lectures and workshops, and social
activities in a nonresidential, yet home–like setting 914-644-8284 http://
Good Grief Helping Children and Teens Cope With Loss
KidsKonnect The mission of KidsKonnect is to provide friendship, understanding, education and support
for kids and teens who have a parent with cancer or have lost a parent with cancer. Toll Free Support Line: (800) 899-2866
Kids Group — For Children Who Have a Parent with Cancer Face to Face Connecticut
A monthly gathering for children ages 5-12 whose parent has cancer. Specially designed craft activities
help children feel safe to ask questions, express feelings, and share concerns while learning coping
strategies. A concurrent group for parents is also offered.
Leukemia Lymphoma Society– a national organization dealing with all types of
blood cancers. It offers a wide range of free educational and support programs for patients, their families, caregivers and healthcare professionals.
Bilingual services are available. Go to their site www.lls.org to locate a branch near you. 800-955-4572(toll free)
Lupus Foundation of America – www.lupus.org there are resources, advocacy
centers a, directory of local chapters, and calendar of upcoming events.
Mesothelioma Guide – offers patients with mesothelioma easy to understand information about their diagnosis, treatment options and prognosis..Mesothelioma is a rare, but aggressive cancer that is caused by exposure to asbestos fibers. This cancer causes tumors to grow on the lining of the lungs, abdomen, and heart. The goal at Mesothelioma Guide is to increase mesothelioma awareness, provide the best information possible to patients and their families, and to support patients with this detrimental cancer.
Mesothelioma Center –Provides the most up to date information on asbestos related illnesses, including the many types of Mesothelioma.They provide the most up to date information on the causes, symptoms, and prognosis of individuals that are affected by Mesothelioma. Additionally, they have a team of patient advocates that work one on one with patients and their families connecting them with doctors, treatment centers, support groups and much more during and after diagnosis.
Mesothelioma Specialists– Provides mesothelioma patients information on the top Cancer Centers and Doctors who specialize in mesothelioma treatment.
No Boobs About It -The mission is to provide services that facilitate new beginnings in survivorship. It has a wonderful list of resources and other patients share their stories as well.
National Alliance for Grieving Children The National Alliance for Grieving Children promotes awareness of the needs of children and teens grieving a death and provides education and resources for anyone who wants to support them.
National Brain Tumor Foundation– national organization dedicated to providing
information and support for brain tumor patients, family members, and healthcare
professionals 800-934-2874 (toll free) www.braintumor.org
National Kidney Foundation – www.kidney.org this organization will help you
find a local affiliate as well as finding information on advocacy and transplants
Parenting at a Challenging Time In 1997, Dr. Rauch and the chief of child psychiatry at Massachusetts General Hospital for Children, Dr. Michael Jellinek, joined with the leadership of Massachusetts General Hospital Cancer Center, Dr. Bruce Chabner, and then vice president Kate Walsh, to launch an initiative to address the needs of parents with cancer. Attention, time, and resources were committed to helping parents who were concerned about the emotional impact their illness might have on their children.
Parenting With Cancer A resource for parents with cancer and the family and friends who love them.
Sesame Workshop – The When Families Grieve program was developed to help children summon the strength to heal after the death of a parent. Through DVDs, family activities, and books included in the kits, Elmo and his friends encourage children to open up about their feelings to help relieve the sadness, anxiety, and confusion they often experience. An accompanying educates parents and caregivers on strategies for discussing death with children and reassuring them that, with love and time, things will get better. Resources are available in both English and Spanish.
SHARE (Self-Help for Women with Breast and Ovarian Cancer)- provides
free support and programs for women with breast or ovarian cancer, and their
families and friends. Services offered in Spanish as well. 866-891-2392 (toll free)
Single Fathers Due to Cancer The mission is to help single fathers due to cancer cope with the loss of their wife or partner, meet the demands of sole parenthood, and manage their children’s grief.
Susan G Komen for the Cure– information on resources, advocacy, and treatment can be found her. Each Komen affiliate has an emergency fund that can be accessed by your social worker.
Support Connection provides emotional, social and educational support services
to women, their families and friends affected by breast and ovarian cancer.
The support enables women to help each other and empowers them to become
their own health care advocates. They provide services locally and regionally
through counseling, support groups, wellness programs, educational forums and
linkage to community resources. We also support women on a national level by
providing telephone support groups for breast and ovarian cancer, educational
teleconferences and a toll-free hotline. 914-962-6402;
Westchester Jewish Community Services– offers a wide variety of community
and support services including home health and personal care. There are support
group groups and a host of other programs. Located in White Plains, NY their
number is 914-761-0600. www.wjcs.com